CRUMBS

This is Haley. She is a person, just like the rest of us. And she suffers from CRUMBS*.



We're here to dispel the myth that CRUMBS is contagious and plea for compassion for dozens of people like Haley who live with the discomfort and humiliation of CRUMBS everyday.



We've put together a list of tips in case a loved-one has a monkey bar episode.**

1- Stay calm.
2- Prevent injury.
During the episode, you can exercise your common sense by insuring there is nothing within reach that could harm the person if she struck it.
3- Keep onlookers away.
4- Do not hold the person down.
5- If the person thrashes around there is no need for you to restrain them. Remember to consider your safety as well.
6- Do not put anything in the person's mouth.
7- Contrary to popular belief, the person is incapable of swallowing their tongue so you can breathe easy in the knowledge that you do not have to stick your fingers into the mouth of someone in this condition.
8- Do not give the person water, pills, or food until fully alert.
9- If the episode continues for longer than five minutes, call 911.
10- Be sensitive and supportive, and ask others to do the same.









"I have CRUMBS. But I'm still a person."




*CRUMBS: Chronic Raging Unbearable Monkey Bar Syndrome.
**This list was adapted from a "What to do when someone has a seizure" list. CRUMBS is very similar to epilepsy in many ways.
Read More 6 comments | Posted by Matt Broadway edit post

6 comments

  1. Unknown on August 21, 2008 at 2:18 PM

    This is a genetic condition resulting from the T-4U gene carried by the father and passed to the daughter. Although Haley's father does not suffer from CRUMBS, the syndrome, he does exhibit the tongue protrusion during physical activity.

      
  2. Anonymous on August 21, 2008 at 10:44 PM

    Why haven't we had a special about this on 60 minutes yet?

      
  3. Anonymous on August 21, 2008 at 10:47 PM

    Why haven't we done a special about this on Dateline? I'll bet those hacks at 60 minutes will beat us to it.

      
  4. Anonymous on August 21, 2008 at 10:49 PM

    I want to give that girl a car and a lifetime subscription to my magazine "O" You are so brave, girl. Be strong. Also, be sure to read my lastest book club pick! Anna Karenina by Leo Tolstoy

      
  5. Anonymous on August 21, 2008 at 10:51 PM

    She's obviously a liberal wingnut, the likes of which are ruining this country! Bush is the bomb and I'm a MAN BABY!

      
  6. Matt Broadway on August 22, 2008 at 9:19 AM

    Wow. I don't even know what to say.

    I'm so thankful that the press is finally turning their attention to this.

    And Ann, I admire your candor.